Juliet Perri was born on the morning of May 15, 2014, she came to us very similar to our older two children. We had a nice drive in to the hospital, in the middle of the night, just like her siblings, she did hold on a little longer to be born as it was mid-morning. Her newborn screen was normal except for the dots in her eyes, our pediatrician, wasn’t concerned, but thought that they did not look normal. Fast forward a 3 weeks and they were a confirmed cataracts, however our Eye Dr. was not worried and just wanted to see us again in 2 months.
Around the 4-5 weeks of age, we noticed that Juliet didn’t seem to be gaining any weight, although she ate, or tried to eat, like any other newborn. We got a Dr. appointment, and were admitted to the hospital for, “Failure to Thrive”, it was at this point that they did an MRI on Juliet and we learned about her, ACC (Agenesis of the Corpus Callosum). It was at this point that our real journey began.