The Diagnosis : Vici Syndrome

On December 11, Juliet was officially diagnosed with Vici Syndrome.

“Vici Syndrome (VS) is an extremely rare multi-system disorder characterized by an absence of corpus callosum (part of the brain), low muscle tone, significant developmental delays, cataracts, heart muscle disease, abnormalities of the immune system, seizures,recurrent severe infections and in some cases loss of hearing. Life expectancy for children with VS varies between ages three through eight.” –

Doctor’s at Childrens are not familiar with the disease due to it’s rarity, but are in full research mode.

This is the information in our hands at this moments, more background from the day Juliet was born until present will eventually be making it’s way to the blog.

One thought on “The Diagnosis : Vici Syndrome”

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s