Mt daughter shares several symptoms with Juliet, like ACC, although she has a different rare diagnosis. I wanted to say I know lots of parents who have been given no hope for their kids (like we were) but the kids defy the odds and are doing great. Especially with rare diseases, docs just don’t know as much as they claim. I hope Juliet does well. 🙂 Hang in there!
RareJul 
Mt daughter shares several symptoms with Juliet, like ACC, although she has a different rare diagnosis. I wanted to say I know lots of parents who have been given no hope for their kids (like we were) but the kids defy the odds and are doing great. Especially with rare diseases, docs just don’t know as much as they claim. I hope Juliet does well. 🙂 Hang in there!
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